Do you ever find yourself loving Google, yet hating it at the same time? That was the case for me as I spent more and more time researching and looking up information during the two weeks leading up to my cystoscopy earlier this month. My last four urine tests all showed blood in the urine, which was actually part of the reason for my referral back to nephrology. And, although the hematuria is most likely due to IgA nephropathy, my doctors wanted to send me to urology just to make sure everything was good there, since–I later learned–all cases of repeated hematuria not caused by urinary tract infections should be referred to urology. Continue reading “Cystoscopy: My fears and anticipation vs. what actually happened”
Today’s episode is a special solocast where I’m taking the opportunity to answer the most common questions that many of you, my fellow IBD warriors, ask me through Instagram, email, and my blog. My first “solocast” was Episode 6 where I shared my full Crohn’s story, so be sure to check that out if you haven’t yet and want to learn more about my journey. Continue reading “Episode 24: Stephanie Gish answers her most-asked questions!”
My heart was racing at 100 beats per minutes. My skin was pale. My hands were cold and clammy…
Let me rewind 48 hours and take you back to Thursday with me.
My legs were weak when I arrived at work and walked down the hill toward the chapel on our school campus. I hadn’t worked out, yet my legs felt wobbly. Our seniors were graduating and every year we hold a Baccalaureate service to honor and celebrate them as they prepare for college and the next chapter of their lives. Continue reading ““But you don’t look sick.””
In this episode, Zach and Chelsie Leighter share their stories of battling Crohn’s Disease. Together since high school, they are now married with a little boy, Kash. Zach was diagnosed with Crohn’s at the age of 12, has been on countless medications from steroids to biologics, and just one month ago had his temporary ostomy made permanent. His wife Chelsie, having watched Zach fight his disease for so many years, received her own Crohn’s diagnosis this past September. They are now dedicated to raising awareness about IBD and passionate about helping to educate others on what living with a chronic illness is like. Continue reading “Episode 18: Zach and Chelsie Leighter, Crohn’s Warriors”
I often get asked what I do to manage my Crohn’s. I’ve been battling Inflammatory Bowel Disease (IBD) since my first major flare back in 2006. I did OK on biologics–never really having complete relief from my symptoms–but, I’m now on my second attempt at going medication free and about to hit the three year mark (my first attempt got derailed when I decided it would be OK to binge on Papa John’s pizza and cinnamon knots on the weekends…bad idea).
This week’s guest is Meghan Cary Brown. At 27 years old, Meghan has lived 10 years with active disease, 13 years with indeterminate Crohn’s/Colitis, and 3 years with an ostomy. But IBD can’t stop her. In that same time, she’s also gotten married, graduated college, lived in four different states, travelled abroad, adopted a zoo of fur babies, and–most recently–landed her dream job as a Patient Coach. Continue reading “Episode 16: Meghan Cary Brown, Crohn’s/Colitis Warrior and Patient Coach”