In today’s episode, Kiersten Thomson shares her journey with Crohn’s Disease and how she leans on the power of food to help manage her symptoms. Not willing to accept the idea that food didn’t matter, she sought the help of a functional medicine doctor. For the next year, she did well. She cut out inflammatory foods like sugar and gluten and kept to a strict diet. But despite her best efforts, in late 2018, she developed a microtear in her colon. The intense pain sent her to the hospital and she was informed she would need immediate surgery.
In a surprising twist however, on the day of her surgery–just minutes before–her surgeon came in and recommended that she not have the surgery. Instead, he told her that she could avoid the surgery if she took medications and followed exactly what he said; she took his advice and followed his plan.
Humira helped her symptoms to calm down for most of the past year, but toward the end of that first year, the effectiveness was already starting to lessen. Kiersten shares her recent decision to come off of medication–from insurance to family planning–and talks about her renewed effort in focusing on her diet and adhering to the Specific Carbohydrate Diet.
She’s now embracing a new path that has been shaped by Crohn’s. She’s sharing more of her journey, advocating for those with IBD, sharing research and information on her social media, and now revamping her blog to focus on what lies ahead with new SCD recipes and life with IBD.
Some days, I almost forget that I have Crohn’s Disease. Honestly, I don’t think there’s been a single day since my diagnosis 13 years ago–or even since my first symptoms 17 years ago–that I haven’t thought about Crohn’s or digestive issues. But for the most part, my day-to-day life with Crohn’s is well managed…and although I do think about Crohn’s on a daily basis, there are moments during the day when I really do forget that I am battling a chronic illness, and always will be. Which is why this most recent appointment with my gastroenterologist was a bit of a shock back into reality for me.
Do you ever find yourself loving Google, yet hating it at the same time? That was the case for me as I spent more and more time researching and looking up information during the two weeks leading up to my cystoscopy earlier this month. My last four urine tests all showed blood in the urine, which was actually part of the reason for my referral back to nephrology. And, although the hematuria is most likely due to IgA nephropathy, my doctors wanted to send me to urology just to make sure everything was good there, since–I later learned–all cases of repeated hematuria not caused by urinary tract infections should be referred to urology. Continue reading “Cystoscopy: My fears and anticipation vs. what actually happened”
In today’s episode, Jenny Pascoe shares her Crohn’s story and how it took 10 years of battling symptoms before a capsule endoscopy confirmed a diagnosis of IBD. She struggled during those years trying to find ways to manage her symptoms, including numerous dietary changes, and even found herself wondering if it was all in her head, as many of her doctors suggested. Eventually, it took the persistence of her mother to tell her she wasn’t leading a normal life and finding the right doctor to determine Crohn’s Disease. Continue reading “Episode 39: Jenny Pascoe (@crohnieintheclassroom) talks travel, hypnotherapy, meditation, and fitness”